Velo-cardio-facial syndrome is a relatively new syndrome--the genetic test to determine its presence has only been available since 1994. There are currently no books available to address the educational needs of this population, yet virtually every child with velo-cardio-facial syndrome needs special educational programming. This new book effectively blends the thoughtful research that has transpired within the past ten years with practical and current educational strategies to help meet the needs of children with VCFS and similar developmental disabilities. To first address the scientific information that is needed to understand the syndrome and the implications of current research, expert contributors present the results of studies involving brain abnormalities, language/learning profiles, and psychiatric/behavioral difficulties. These valuable chapters are written in a reader-friendly manner to help parents, professionals, and teachers gain useful and necessary comprehension of the unique characteristics of the VCFS population.
The second part of the book is a practical guide to educating a child with VCFS from birth through adulthood. Divided into the various stages of development from preschool to adulthood, it includes information regarding the necessary tests special education teams should run, typical difficulties associated with learning, changes that occur with ability as the child matures (drop in IQ scores and increased learning challenges), as well as behavioral problems in the school setting. Each section includes discussions of the learning challenges and accomodations that can be used at school and at home during that stage of maturity. The authors also present meaningful advice on issues such as friendships, private vs. public school placement, job training, and other pertinent decisions that affect the VCFS child's everyday life.
A pioneer of its kind, this book is an essential resource for teachers, parents, physicians, and therapists of children with velo-cardio-facial syndrome.
