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My Mighty Mito Book

My Mighty Mito Book

          
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About the Book

This is the perfect book for your child! It has colorful and fun illustrations. Mitochondrial disease affects people of all ages. Often, children benefit from books which explain symptoms and feelings in clear wording and bright photos. 'My Mighty Mito' has space for your child to personalize the book in the front as well as room for your child to write his/her own feelings and symptoms to help them to know that other children go through similar experiences and that they are not alone. 'Mighty Mito' is what Joshua Koscinski has called his mitochondria since he was a young child. Joshua is a thirteen year old who lives daily with the difficult symptoms and effects of mitochondrial disease. His desire is to help other children to know there are more kids like them out there and to not feel afraid. Often children with special needs benefit from 'social stories' or stories that help them to understand what is happening to them. For Joshua, writing is a way to let other children know that they are amazing! Cristy Balcells, founder of MitoAction.org and author of Living Well with Mitochondrial Disease wrote the foreward for our book. We hope you love reading it as much as we loved writing it. Joshua lives with mitochondrial disease, autism, Ehlers-Danlos, Sensory Processing Disorder, speech and motor delays, and eosinophilic esophagitis. When he is unable to walk, Joshua uses his granny smith apple wheelchair. He is home schooled since mitochondrial disease severely limits his energy level. Joshua is fed via a GJ tube (gastrojejunostomy tube) since his stomach doesn't function effectively. He is hyper-sensitive to heat and humidity, which is common in those with mitochondrial disease. Cara Koscinski, MOT, OTR/L (known as The Pocket Occupational Therapist) is Joshua's mother. She has authored four books and travels throughout the US to help educate therapists, parents, and teachers about working with children who have special needs. Visit her website at www.PocketOT.com for more information. Joshua has been a guest on the Anderson Cooper daytime talk show, on the cover of AutismAsperger's Digest, and AutismFile magazines. He is an advocate for other children who have mitochondrial disease.
About the Author: Joshua Koscinski is a 13 year-old who loves social media. He is a Minecraft fan and has two dogs, Peaches and Molly. He is homeschooled due to extreme fatigue, food allergies, and medical needs. He runs MyMightyMito.org website and https: //www.facebook.com/mymightymito/ Pediatric occupational therapist, Cara Koscinski, MOT, OTR/L, is Joshua's mother and author of The Pocket Occupational Therapist Book Series. Little did Cara know that her passion would serve her so well in both her professional and personal life. Cara practiced OT, primarily serving an adult population, for years. It wasn't until she had two special needs kids of her own that she made the switch to pediatric OT. Cara's son is on the autism spectrum and has sensory processing disorder. Her younger son has mitochondrial disease, a severe case of Eosinophilic Esophagitis and uses a feeding tube for nourishment. At times, he requires a wheelchair for mobility. In addition to her longstanding work as a private practice OT, Cara is a successful entrepreneur, having started her own company, Route2Greatness in 2005. It was created to fill a need Cara's own son had -- a fun and creative way to help with sound sensitivity related to sensory processing. The CDs, called Sound-Eaze and School-Eaze are available at http: //www.PocketOT.com, Amazon, or through special needs product retailers. The first book, The Parent's Guide to Occupational Therapy for autism and special needs, is an accessible overview, that explores how OT can help kids with special needs succeed in the home and community. Written in an easy-to-follow, Q&A format, the book discusses some of the most common issues parents face, including core muscle strength, feeding, fine motor skills, sensory sensitivities, transitions, and life skills. In her second book The Special Needs School Survival Guide, Cara focuses on how OT helps children with special needs be successful in educational settings. Written for parents, caregivers, educators and home schoolers, The Special Needs School Survival Guide provides answers to the most commonly asked educational questions and challenges, including Autism, Sensory Processing Disorder (SPD), Learning disabilities, ADHD, Individual Education Plans (IEP), 504 plans, Behavior, and Dysgraphia. Both books are available at http: //www.pocketot.com and at amazon.com Cara provides OT consultations, trainings, and seminars as The Pocket Occupational Therapist across the US and UK.


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Product Details
  • ISBN-13: 9781515229841
  • Publisher: Createspace Independent Publishing Platform
  • Publisher Imprint: Createspace Independent Publishing Platform
  • Height: 216 mm
  • No of Pages: 44
  • Series Title: Pocketbooks for Children
  • Sub Title: A Book for Children Who Have Mitochondrial Disease
  • Width: 216 mm
  • ISBN-10: 151522984X
  • Publisher Date: 20 Aug 2016
  • Binding: Paperback
  • Language: English
  • Returnable: N
  • Spine Width: 3 mm
  • Weight: 127 gr


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